That is Porochista Khakpour (@PKhakpour) pictured on the cover of her new book, Sick: A Memoir. If you’ve been following
her on social media or know someone who has, then most likely you’ve seen her
post about the struggle to diagnose and treat her illness(es). Among pictures
of her poodle and writer friends she has shared photos of herself much like the
one on the front cover, lying in a hospital bed with tubes running along her arms.
I was peripherally aware of her situation (coming from a graduate creative
writing program), but I did not experience her story in real time as so many of
her friends and followers did.
#AWP17 just got discharged from Howard University Hospital. Anyone around to help me with a couple things? pic.twitter.com/DZced5eTQp
— porochista khakpour (@PKhakpour) February 12, 2017
What I have
experienced vicariously through friends and family is the state of healthcare
in the United States that Khakpour documents meticulously throughout her narrative.
In particular, the systemic disbelief, dismissal, and disregard for
women experiencing chronic illness and pain. Healthcare in our country is
expensive, not only in terms of money but also time and energy. The years
Khakpour had to put in with numerous hospital visits, doctors, and specialists (including New Age
alternatives) before receiving the correct diagnosis are harrowing. Much like
Sinclair’s The Jungle or Friedan’s The Feminine Mystique, Khakpour is
reporting on the reality we all experience, but fail to acknowledge to our own
detriment.
IV Lyme sisters 👯 (Don't worry, I will continue to encourage @esmewang to put on the tiara next week). pic.twitter.com/Q01BIokEIe
— porochista khakpour (@PKhakpour) January 6, 2017
For this
reason alone, Sick is must read. But it’s
also an intensely personal narrative, one that isn’t afraid to be honest. The
author is far from perfect, going so far to admit at one point that she makes
herself sick with her choices and behavior, and I immediately wanted to thank her online for that passage. Each of us is guilty of taking poor care
of ourselves, whether physically or emotionally or some elaborate combination
that also damages our relationships or our futures. Our culture and communities
(and complex systemic factors therein) enable these choices and this behavior, which
is further complicated by our need to live fully. Experiencing the mistakes and
recklessness of life often conflicts with our responsibility to be the best
caretakers of our own health. In this respect, Khakpour is being more
courageous than most authors I can name in terms of owning her own role in how
she has suffered through a lifetime of illness. She herself says that she sets
a bad example and shouldn’t be followed. Many people in my life and I would
say the same, making this the kind of self accounting we all need.
Hello from Glendale Adventist. I am on my second bag of IV fluid and reviving. It’s been a rough day but looks like low potasssium and dehydration made my Lyme go haywire. My mom is here laughing at the idea of photos but here you go. pic.twitter.com/0cpieNIqEV
— porochista khakpour (@PKhakpour) January 16, 2018
There’s no
happy ending to the book. She allows that the story is maybe in the middle of
being told, and the ending may not be as pleasant as she intended in the
original book proposal. But her memoir is also a triumph because it speaks a truth we must hear. Her book diagnoses the sickness of a country that is not
providing proper healthcare to its women nor providing an environment of support and
acceptance for people of color. And she wrote it with the unflinching examination
at what a difficult and even sometimes ugly account it is of illness,
addiction, and suffering.
Please contribute to Khakpour's crowdfund if you are able. She details in her book and online how immensely expensive it is to treat late stage Lyme Disease, so every contribution matters. As a reader who borrowed a copy from my public library, the least I could do was donate the full retail value of her book. If you're reading this, and you read her memoir, then this is a simple, significant good you can do.Here we are, late-stage Lyme writer women, trying our best to smile through a hell of a lot pic.twitter.com/odCXKsvu1k
— porochista khakpour (@PKhakpour) May 10, 2018